(A) If a physician diagnoses a patient with sickle cell disease, the physician shall notify the patient of the Sickle Cell Disease Voluntary Patient Registry and the right to register as a person having sickle cell disease. The physician shall provide the patient, or the patient's parent or caregiver if the patient is a minor or is incapacitated, a form on which to request registration. Upon receipt of a patient registration request, the physician shall register the patient.
(B) To register a patient, the physician shall submit electronically on a form developed by the department the name, mailing address, and date of birth of the patient. If the patient is a minor or is incapacitated, the physician also shall submit the name and mailing address of the patient's parent or caregiver.
(C) By submitting the form to the registry, the physician is affirming that the patient has a diagnosis of sickle cell disease and that the diagnosis was made by the physician or that the physician has reviewed the patient's medical records which reflect a past diagnosis of sickle cell disease by another physician.
(D) The department may issue a waiver to a physician who is unable to submit the information by electronic means and permit registration by paper form or other means if all information required pursuant to subsection (B) is submitted in this alternative format.
HISTORY: 2022 Act No. 206 (H.3166), Section 2, eff May 23, 2022.
Structure South Carolina Code of Laws
Chapter 33 - Sickle Cell Anemia
Section 44-33-10. Sickle cell education and prevention program.
Section 44-33-310. Development and maintenance of Sickle Cell Disease Voluntary Patient Registry.
Section 44-33-330. Confidentiality of information submitted to registry; permitted disclosures.
Section 44-33-340. Prohibited use of registry information.
Section 44-33-350. Revocation of registration.
Section 44-33-360. Physicians prohibited from accessing registry without patients' request.
Section 44-33-370. Obligation to update contact information.