The South Carolina Department of Health and Environmental Control shall develop and maintain the Sickle Cell Disease Voluntary Patient Registry for residents of the State who have been diagnosed with sickle cell disease. The purpose of the registry is to:
(1) enable individuals diagnosed with sickle cell disease to register so that physicians and other health care practitioners providing care to the patient may confirm whether the individual has been diagnosed with sickle cell disease; and
(2) collect and study data on the incidence and nature of sickle cell disease in the State to improve patient care and access to services.
HISTORY: 2022 Act No. 206 (H.3166), Section 2, eff May 23, 2022.
Structure South Carolina Code of Laws
Chapter 33 - Sickle Cell Anemia
Section 44-33-10. Sickle cell education and prevention program.
Section 44-33-310. Development and maintenance of Sickle Cell Disease Voluntary Patient Registry.
Section 44-33-330. Confidentiality of information submitted to registry; permitted disclosures.
Section 44-33-340. Prohibited use of registry information.
Section 44-33-350. Revocation of registration.
Section 44-33-360. Physicians prohibited from accessing registry without patients' request.
Section 44-33-370. Obligation to update contact information.